Acromegaly is a rare disease, making the road to diagnosis and effective treatment a long journey. Discover the powerful story of a patient who turned her struggle into a purpose, along with a psychotherapist dedicated to guiding others through similar experiences. Together, they highlight the huge impact of acromegaly on everyday life and the importance of support from patient associations.
The Quest for Answers: From symptoms to diagnostic
Jill Sisco, President Acromegaly Community and patient
Jill spent years searching for a diagnosis as she noticed her body had changed. Discover how she finally found an answer and a new voice.
Early Diagnosis Saves Lives
Catherine Jonas, Vice President Acromegaly Community
Receiving a diagnosis can take years. Catherine reveals why finding a faster path to treatment is a critical goal for the acromegaly community.
The Fight for a Normal Life
Jill Sisco, President Acromegaly Community and patient
Even after surgery, Jill’s symptoms returned. See how she now works with doctors and the patient community to manage her condition.
From Isolation to Community
Jill Sisco, President Acromegaly Community and patient
After a hurtful comment online, Jill decided to take action. Hear how she built a safe place for people to share their experiences and find hope.
It's a Family Battle
Catherine Jonas, Vice President Acromegaly Community
Acromegaly is a chronic illness that affects every family member. Catherine explains why support for the whole family is a key part of the treatment.
We’re developing new, patient-centric, standard-of-care medicines by measuring the burden of therapy versus the benefit of treatment
The OxtendTM-03 trial is conducted in patients with acromegaly previously treated with somatostatin analogs